Monday is the big day!

Max will be starting dialysis on Monday (6/23)! I spoke with the attending physician tonight and when she asked me if I had any questions, of course I asked, "what needs to be done in order for us to take him home?" Her reply was that he needed to work on his feeds and hopefully be able to do this from a bottle. She mentioned that if he can't get all of his nutrition orally then we could come home with the NG tube that he currently has (through his nose into his belly). This is obviously a lot better than the g-tube that would be placed through his belly. The other thing that needed to be accomplished was the dialysis. She said to expect another 3-4 weeks before he gets to come home! This is huge! She said it like it was a really long time from now, but we are thrilled to hear that it's that soon. Of course, we aren't getting too excited because we don't want to be let down if it doesn't happen- but we are so happy to have some kind of a plan. If he does get to come home 3 weeks from Monday, that would be Tim's 27th birthday! How awesome would that be!!!

Also wanted to let everyone know that Max is doing a lot better with his withdrawal. He is still on the Methadone and will be for a few more weeks- could possibly come home on it if he doesn't take to the weaning all that well. They had to spread it out to four times a day instead of two because he wasn't liking the fact that he wasn't getting his "drugs" as often as he would like. They are going to keep him on the higher dose for a few days while they start the dialysis because it could be a little painful for him in the beginning. They will slowly wean him from there.

I guess those are the main things for now. Oh wait! He got moved back up into his big boy bed! He had to be put back into the isolette while he was on the vent, but he has graduated again! He also smiled at us quite a few times while we were talking to him tonight. We still aren't sure if it was gas or if he is starting to become more aware, but we'll take it :o) We were told by my dad, "Pipi", that we needed to add a new picture to the blog, so here it is!


That's it for now! Ta Ta.