July 1, 2008
Another "speed bump"
Max was taken off of dialysis this morning, again. This time is because of an infection of some kind or something along those lines. His nurse noticed that his vesticostomy (hole in belly) was a lot redder and much bigger than it had been. Nephrology and urology were then contacted and she was told to stop the dialysis until further instructions were given from the chief of urology. When we left this evening, he had not been up to see Max. So, we are still waiting to get that ball rolling.
On a high note, and a strange one for that matter, Max has surprised us with a few squirts of pee coming from where it's suppose to. We (us, nurses, and doctors) were all under the impression that it was totally blocked. So, this is a huge surprise to all of us. Who would have thought that we would have been so excited to see pee come out of a penis! We are still not sure what the doctors are saying about this though. At the time I am writing this, we are still waiting for urology to take a look.
Other than that, Max is loosing his adorable, dark brown locks :o( Also, Rick Neltner has created another beautiful video for us. He will be posting it to the blog soon, so stay tuned for that!
I'll keep you all posted once we here what the next step is for the vesticostomy and dialysis (and the pee!)
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3 comments:
yay for pee!
that poor little guy can't catch a break...i will pray even more than usual tonight for max!
Rick Neltner - you are MEAN! You made me cry with your ridiculously awesome portrayal of Max and his surroundings.
The best pic is at 2:48 in the video with all of the back folds.
You have great vision!
Max's parents - you are nice too!
Brett
Oh that video is awesome! He is so precious, beautiful, perfect, cutest chubby cheeks.
It breaks my heart to see him going through this but thank god he has the parents that he does to go through this journey with him.
Hang in there Max!!
I said this before but I will say this again. Although it seems like torture what they are going through he will have no memory. My son was in the NICU for 3 months and he is the happiest little guy. Everybody comments on how he is all smiles all the time. So please take comfort in that.
Denise
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