WOW! That was one very crappy week! I don't even know where to start. As I said on the previous post, Max ended up with a fever as high as 103.8 on Thursday night. They took cultures from his blood, urine, stool, dialysis solution, and upper respiratory system and everything came back negative. The only one we are still waiting on is the stool sample. So needless to say, no one has any idea what caused this madness.

We also had another scare when Max had an increase work of breathing on Friday night into Saturday morning. He was pulling and tugging to get a breath in, so they did a chest x-ray (three of them actually) and it showed fluid around his lungs. It wasn't nearly as much as before but it was still there. So they stopped the dialysis just in case that was the cause. They repeated the x-ray on Sunday and the fluid had decreased and the one this morning showed almost nothing. They are pretty sure it wasn't related to the dialysis, but then again, no one knows why it happened. So, they are restarting the dialysis today at a lower fill volume of 120mL over a 24 hour period. One of his levels jumped pretty high while he was off so they need to get that number down before they start to decrease the time that he is on it.

The entire week has been a complete emotional roller coaster ride! Tim has been working 16+ hour days every day since last Sunday, so he hasn't seen his little man in over a week and it's killing him. I went from filling out discharge papers and getting all of that stuff together to dealing with what in the hell is causing a 104 degree temperature and fluid in his lungs. Unfortunately, we still don't know and probably never will. On a positive note, Max is back to being himself, playing and smiling at everyone that comes to see him. His nurse was out taking care of her other patient when she heard him crying this morning. She said that when she went in to his room his eyes were filled with big crocodile tears, but as soon as she talked to him he smiled. He is a little spoiled when it comes to getting all of the attention from everyone in the RCNIC!

Have a great week everyone!