Max continues to do a little better everyday. Yesterdays x-ray looked slightly better than the one before so that's good. He ended up spiking another fever yesterday, so they drew another round of cultures from everywhere and started him on an antibiotic. Finally, after Tim and I have been saying it for a week now, they think he might have pneumonia. So that's what they are treating him for. It's so freaking frustrating to not have anyone listen to what you have to say!!! But they are going to do a 7 day antibiotic and hopefully it will nip whatever it is in the butt.
Dialysis continues to go well. They started mixing the dextrose in his solution because everyone was finally on the same page and agreed that they were dehydrating him. He seems to be doing better with this and he is still having positive outputs. Which means he isn't holding onto any extra fluid that he shouldn't be.
They have tried to wean him from his 28% oxygen to room air and he doesn't tolerate it too well. His sats drop into the 80s and we are not comfortable with that. His nurse today said that he slept from 9:30pm to 6:00am last night and that was followed by a 4+ hour nap late yesterday afternoon. He is awake and smiling and talking up a storm. This is also new for him. He has talked a little bit, but now he really talks. You say something to him and he "answers" right back. It's like he knows exactly what you are asking him and he has the right answer. So stinkin cute!
We have a few prayer requests if you wouldn't mind:
My Uncle Dick had to have quadruple bypass surgery plus another emergency surgery to remove a blood clot. He is on the ventilator, has chest tubes and his kidneys shut down so he too is now on dialysis (which is hopefully temporary). Please keep him in your prayers along with Aunt Dianne and their children, that they continue to have the strength that they need to get through this rough time.
Tim's sister also got put into the hospital this week for severe abdominal pains. She ended up having gall stones and had to have her gall bladder taken out yesterday. Please pray that she has a quick and easy recovery and is back up on her feet very soon.
I also juat got news that a friend of ours father was just diagnosed with pancreatic cancer. He will be undergoing surgery and chemo shortly. They think that it's just on his pancreas at this point, so that is reassuring. Please pray that the surgery goes well and that the chemo kicks the cancer in the butt and that he recovers quickly.
We also just got news this week that my cousin Chris and his wife, Jessica are expecting in June 2009. Please keep them in your prayers that they have a happy and healthy pregnancy.
Also keep little Miss Avah who was Max's neighbor in the F Pod of the RCNIC. She got transferred to the trach unit this week. Pray that she continues to grow stronger everyday and that she will soon get to join her family at home.
Also for Miss Carmen who was also Max's neighbor in the F Pod. She was born with her intestines on the outside of her little body and they are finally starting to talk about her going home soon. Please pray that it's a easy transition for her family and that they get to enjoy every moment with her outside the walls of the RCNIC.
Thank you everyone for all of your love and support. We'll keep you posted!
6 comments:
I hope Max continues to get better. Dylan is praying extra hard for him. This has been a week of bad news for a lot of people I think. I had 3 bad news things also so extra prayers are going up for everyone this week. At least we got the good news about Chris and Jessica! Stay strong and we will keep Max in our prayers!
Katie Ruschman
Glad to hear the little guy is talking. Maybe one of these days, he'll be able to tell you exactly how he feels so you don't have to play doctor all the time. :) What a neat experience and memory for you guys though. Thanks for our moment of fame. We are sending lots of prayers your way, and thanks for the update on Lori!
Love,
Chris and Jessica
i hope that things continue to improve for max. sending lots and lots of prayers....
Glad to hear Max is a little better. Love, love, love the talking phase! You are his only voice and many times Moms are right on target even before the doctors. We are gathering quit a crowd and many orders for the Tastefully Simple party next Wednesday! Once again, let me know if you have any questions or want to talk about the letter we spoke briefly about. We will pray for everyone one on your list!
Jenni Ward
344-0902
I'm thinking of you and praying for you guys! I hope Max is back home with you again soon.
Melissa
Beth, Tim & Max,
Keeping all of you in my prayers. There will be many days of ups and downs. Keep your chin up and don't lose faith. God takes care of all of his angels.
Sandy L
Post a Comment