November 6, 2008

Well Max continues to do very well with the dialysis. Yesterday was his third round and he did pretty good. We had a couple of incidents where he got very fussy. They determined that they were pulling too much fluid off of him and as soon as they gave it back he was fine! Everyone is very happy with how it's going. Of course there are still a lot of risks and things that can go wrong, so we are keeping our fingers crossed that all continues to go well. The nephrologist was ready to send him home today, but the medical team is working on condensing his feeds back to a bolus instead of a continuous. So, we are getting close. I am not mentioning any of the days that I was told. After 6 months of this, I have finally learned my lesson.

Nephrology is also getting close to wanting to start talking with surgery about the transplant. Considering he has several objects jutting out of his belly, they are wanting to see what needs to be fixed before the big surgery. They are mostly wanting to get the urinary tract fixed and ready for the new kidney. Max is already 6kilograms, which means that we are more than half way to the minimum weight for transplantation (10 kilos is the goal). Tim and I are standing by for the information on what we need to do to get tested to see if we are a match. They are aware that we are willing to do this and are preparing to get the ball rolling.

Let's see: Max is a totally different baby now that they got all of that fluid off of him. He is still a chunky monkey, but not nearly as swollen or pudgy as before. He looks like a little boy instead of a baby- it breaks my heart that he is growing up so quickly :o( That's alright though. The sooner he grows up, the sooner we can (fingers crossed) move on and live somewhat of a normal life. We are looking forward to that! He is starting to laugh out loud, but only when you tickle him. We are looking forward to getting him home so that we can work on his motor skills a lot more. We're told that he's not too far behind though. We'll get him back on top! We're limited to how much he can do being stuck in a hospital bed hooked to monitors.

I think that is it. Thank you to all for the love, support, and prayers. Once again, Max has proven to be a true fighter. He impresses us every day with how much of a trooper he is.

4 comments:

Anonymous said...

Yay! I am so happy to hear the great news! We continue to pray for him everyday and are amazed at all he has accomplished. Hope he gets to come home soon.

Love,
Chris and Jessica

Anonymous said...

That is great to hear. I hope that one of you guys is a match for Mighty Max.

He is a true fighter no doubts about that!

Take Care
Denise aka Matilda&Leon

Anonymous said...

What a great update! Keep up the fight Max!! You are doing great!

Joanna -- tinytot_924

Rachael Schirano \\ Rachael Schirano Photography said...

yay! keep up the good work max...you are one heck of an inspiration! as are your mommy & daddy! as always...we are praying!