Max's 9th surgery is tomorrow

Max will be having his first of two bladder surgeries tomorrow at 1:00pm. We have to be there at 11:00am to get admitted and all of that jazz. He will be having two scopes (one of his airway and one of his bladder), his vesticostomy closed, a supra pubic tube placed in his belly, and his valves fixed (hopefully). The supra pubic tube is placed so that we can do the bladder cycling that will hopefully stretch his bladder so that we don't have to do the bladder reconstruction in the second surgery. I am scared out of my mind over this. You would think after 8 previous surgeries that this would get easier, but it doesn't. That final hug and kiss in the hallway before he goes back is pure TORTURE!

Another Update: There is a chance that Max's transplant may not take place in 2009. His bladder has to be working correctly before they will even consider putting a "perfect" kidney in and this may take some time. Tim and I totally agree with this, but are very ready for this to be behind us so that we can go on our first family vacation in 2010 :o( We are all ready for a break and are hoping and praying that his bladder will start cooperating with us. We will know more in a couple of months on whether it looks better or not. It's going to be a long winter :o(

On a happier note, Max qualified for the First Steps program and is scheduled to have physcial therapy and speech therapy come to work on his motor skills and eating skills. So that gives us something to look forward to.

RCNIC nurses: We think Max will be admitted to the A6 Central floor. I will confirm this with a room number tomorrow for those of you that would like to visit. I don't know how the new winter visitation rules apply for this. I am sure that you girls know more than I do.

I will post an update tomorrow once Max is out of recovery and settled into his room.