November 19, 2009

More Prayers Needed

Tim's dad needs more prayers. He had another seizure Saturday morning which landed him back into the ICU at St. Elizabeth. The doctors have changed a couple of medications around in hopes that it will eliminate the seizures. Larry is once again having a hard time recovering from this episode. As you can imagine it is very hard for his family to see him in the state that he is in. Please pray that the chemo and radiation gets rid of the tumor so that we can get Larry back.

Brooke delivered baby Gabi yesterday afternoon. The doctors say that Gabi looks great. They have her in the NICU at Good Sam and are running some tests to rule everything out. My sister-in-law said that mom and dad are doing well, but that the NICU is very overwhelming. Please keep them in your prayers.

Max, well Max gave both Tim and I a heart attack over the weekend. He woke up Friday having a hard time breathing again. No matter what we did with his dialysis he still woke up pulling and tugging with every breath. We weren't getting any fluid off of him so his weight climbed quickly. Dr. Brad asked us when the last time he had pooped was and we couldn't remember (we think it was a week- oops). So we started him on a good dose of Miralax and 4 days later he finally exploded. Ever since then we have had good dialysis, his weight came back down and his breathing is so much better. When someone on PD is constipated the catheter can get stuck against the bowel or get pinched which results in a low UF (ultra filtration) which then results in an increased weight (fluid overload) and in Max's case, an increased work of breathing. All is well now.

Max is also on the verge of walking in his walker. We put him in it and he goes to town cruising backwards. We have decided to increase is physical therapy time to twice a week. Mr. Dan (physical therapist) would like to have him walking before his transplant to help with his healing process, so he felt it important to work with him as much as possible until the end of the year. So on Mondays we will take him to Mr. Dan's office and on Thursdays he will come here to the house. We are hoping to have him taking steps by Christmas. Fingers are crossed.

Project Santa is doing pretty well. If you would like to know more information or if you are interested please email me at mommy2max08@yahoo.com.

Something I am very excited about... I am going to the movies for the first time in 2years with my mom on Friday. Yes I am one of those crazed "Twilight" fans that's going to see it's newest addition on opening night :o) Can't wait!!!

And that ladies and gentlemen is the story of our life right now.

Enjoy your weekend.

1 comment:

Anonymous said...

It seems like a flag should be thrown for piling-on!

The Livingston family has really been dealt a tough hand to play over the past couple of years.

They are a tough lot and will weather this storm also.

Pull through, Larry! We miss your smiling face, can-do attitude, quick wit, and willingness to help. Just a small part of his job!

DS/BBHS