It's going to be a VERY long day

So we were told that Max would only need one dose of the IVIG that he received last week, but plans have changed. We are sitting here at CCHMC waiting for the VAT team to put an IV in so that Max can get his second out of four infusions on the IVIG. Yeah, we have to do this two more times.

We also found out that the antibody that is attacking Max's kidney is rare/new. Rare/new enough that they don't even test for it in the pre transplant labs. So on top of the 4-6 hour IVIG infusion, Max will be getting another medication called Rituxan that takes another 4 hours to infuse. 10 hours of infusion plus the 2 hours of waiting for an IV and the hour that we have to wait after the infusion ends before we can get discharged equals a very long and tiring day for both Max and I.

At this point in the post, Max has his IV and has started the Rituxan infusion. We waiting an hour and forty five minutes for the VAT team and it took 45 minutes to get the IV in and secured. Thankfully, they were able to get it in on the first stick but with the complete and utter breakdown that Max had, he was sweating bullets and they couldn't get it taped down. They started the med right away and the pump kept alarming so they had to switch pumps. Finally, at 10:30am, things are going smoothly- two and a half hours after we got here for our 8am appointment.

one half hour down...