Urology Follow Up

Max had his urology follow up appointment last week. Dr. Alam walked in and started laughing because Max was literally climbing up the windows.

He took a look at Max's vesicostomy and said "We'll see you back in 6 months with an ultrasound." I looked at him confused because we always do ultrasounds and follow ups every 3 months. He told me that Max is clearly growing very well since the transplant and that he "has faith for his bladder." He wants to give nephrology the time that they need to get Max's kidney 100% healthy and to get his meds situated.

6 months from now will be Max's 3rd Birthday! I can't believe it. At our next appointment we will ramp up Max's ditropan to help with the stretching process of his bladder. 3 months after we do that, Max will have a urodynamics and a VCUG done to see if his bladder has grown and to check the pressures. With that information, we will be able to see if Max's vesicostomy can be closed.

So this all means that it's possible that Max will have a closed system in less than a year! We are holding onto hope, but not getting them too high. We are well aware that there is still a chance that he will need a bladder reconstruction, but there is nothing wrong with keeping the faith- especially when the doctor told us he has faith as well.

Keep the faith.