240

Max's PD fluid was increased to 240mL's last night. He did fantastic!!!

We do have one issue: During his hemo treatment yesterday, his catheter stopped working. There are two lumens on his catheter and when this happens it's usually just one lumen. Yesterday it was both. We had to cut his treatment an hour short. His blood was fairly thick so I am hoping that it was just a clot and that his TPA will break it down. Please say a quick prayer that this is what it was and that the day hasn't come that the catheter is finished. We will find out tomorrow afternoon. I will be packing our bags... just in case. Maybe if I prepare ourselves for not coming home then it won't happen. ***fingers crossed***

Dr. Dixon is covering the dialysis unit this week so he got to see Max again yesterday. He is still very happy with how things are going, despoite the whole catheter incident later in the day. He said that if the saturation study that will be done next week shows that all is well, they will move a little faster on increasing his PD fluid (20mL's per week rather than 10mL's). His main reason is because those levels that were gorgeous last week are slowly increasing back up. They are by no means where they were, but are trending upward and he wants to stop it before they get out of hand again. I also asked him what his idea of waiting for the transplant meant and he said hopefully two years, which would mean that Max would be about 3 years old.

As far as appointments and tests go we have the saturation study next week, sleep study on the 21st and his pulmonology appointment on August 3rd. We also have his 6 month follow up with the First Steps program to go over how he is doing and what not. This will determine if he needs more or less therapy, etc. This takes place on the 29th, I think.

Overall, Max is doing GREAT! He looks like he is growing to me, he is developing and sleeping with some pretty good sats. We couldn't be happier.

One more quick piece of info that we ARE totally looking forward to is that my dad is setting up a long weekend trip to Dale Hollow Lake in October. This will be Max's first trip and we are pumped about it! It's going to be a lot of stuff for a four say trip, but we'll make it work. Can't wait!!!

Enjoy your week!