Weekend Thoughts

What a fantastic weekend! Everything started on Friday when we got Max's lab results. They're beautiful! His hemo dialysis treatment went picture perfect! To top it all off, Tim and I put an offer on a lot last week, they counter offered, we counter offered again, and they accepted it on Friday! We went to dinner to celebrate the days events with my mom and dad.

Max's first evening on 270mL went pretty well. We had a couple O2 alarms, but nothing major. We still aren't convinced that they are Max actually desating. The equipment isn't the best according to the respiratory therapist.

Saturday- a beautiful day! Max and daddy spent most of it outside doing yard work, while I finally got a free day to run some errands.

Sunday- daddy got called into work at 1:00am and didn't get home until 3:00pm this afternoon. He got two hours of sleep before we headed to my brothers house for dinner.

Tim and I had a conversation about how blessed we are tonight. We talked about the fact that even though our son has a chronic illness we wouldn't trade our lives for anything. Sure we would love for Max to be healthy, but we wouldn't have met the wonderful people that were brought into our lives through his illness. We wouldn't trade the friendships that we formed with the RCNIC nurses that took care of Max in his first 6 months of life. The laughs, the tears, the encouragement, the strength and the wisdom that those ladies provided to us will always be remembered. As bad as it was to have to go to the hospital to see our son, we met the best group of ladies in the process. They will ALWAYS hold a special place in our hearts. We love you ladies!

The nephrology team: what do you say about a group of people that have saved our son's life? We were talking about how devastated we will be if Dr. Ben switched hospitals after his fellowship is up in 2 years. I don't know what we will do if he chooses to take a different path. He has been with Max since he was a month and a half old. My heart breaks to think about it. The relationship that we have between Dr. Ben and Dr. Dixon will be one that will last a lifetime, whether they are Max's doctors or not. The nurses that we spend 14+ hours a week with in the dialysis unit will also hold a special place in our hearts forever. We are actually getting pretty close to not seeing them 3 days a week. Once Max's catheter is out, we will only see them once a week for awhile and then only once a month. I honestly have no idea what I am going to do with my spare time. They are my adult interaction throughout the week. What am I going to do to keep myself from talking babble and singing nothing but Handy Manny and Playhouse Disney songs? It's another chapter in Max's novel that I will have to end and a new one that I will have to begin.

I'll keep you posted on how chapter 223 goes. With all of that said, I am asking you to please keep the McRae family in your prayers as they begin chapter 1 of their very long novel. They 5 year old little girl, Kate, has a very aggressive brain tumor. Read her story at www.prayforkate.com. She is having a test tomorrow to determine her kidney function and then will be starting her chemo treatments Tuesday or Wednesday. Please pray for this beautiful little girl. If you go to www.youtube.com and type in Kate McRae it shows three videos that her family has made asking for your prayers.

Have a great week everyone. I will let you know how Wednesday's dressing change goes with the stitches and catheter. Please continue sending up those prayers.