Max got discharged on Saturday evening just like planned. We did end up getting one more test result Friday night that we were hoping not to get. Max's body is creating antibodies against the kidney. So not only does he have the cellular rejection that we found out about on Thursday, he also has this antibody rejection.
Saturday morning Max was hooked up to his steriod and another medication called IVIG. The doctors feel that one dose of the new med should take care of the antibody rejection. I believe the plan is to get another biopsy in 2-3 weeks to make sure that there is not any more rejection in the kidney.
Max was very glad to be home (and so were his mom and dad). We learned that something as little as a cold could put these kiddos into rejection since their immune systems go into overdrive to rid of the illness it tries to get rid of everything- including the foreign kidney. With that said, Max has become a hermit. Tim and I have decided not to take him out at least until we make sure that this rejection is gone, possibly through flu season. Yes, we may be going over board, but this rejection thing is not something to take lightly and to be honest it was the worst piece of information we have ever received. I still think we will take him Trick or Treating and to the Pumpkin Patch since both are held outdoors, but other than that, the poor little man is "tuck" inside the house.
We will be heading in for repeat labs and a follow up visit, so please continue to keep him in your prayers. We need that creatinine to stay at .3 or lower. We are not out of the woods just yet- heck we will never be out of the woods now that I think about it.
Prayers are greatly appreciated.
3 comments:
Wishing you all the best luck. I have been saying so many prayers for you guys the last couple years! Lock down the house and stock up on the hand sanitizer!
So glad things are looking up, but will definitely keep praying.
A wise quote from a young lady who was wise beyond her years. I hope this gives you some food for thought, and perhaps keeps you going through this difficult ordeal.
“A miracle is a pleasantly unexpected event in life that gives hope to those who need it, reassurance to those who don't, and awe to those who never believed it was possible.”
- Meredith Rankin, August 2007
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