Wow if we didn't just take about 10 steps backwards. We got a call last night around 10:00 saying that Max was trying very hard to breath. He had a lot of pulling and tugging in his chest. He was also not able to keep his oxygen saturation levels up where their suppose to be. So the resident on call ordered a chest xray which showed fluid surrounding his lungs. They gave him a dose of Lasiks, which is a drug that flushes out extra fluid. They also increased the perscription of his dianeal fluid to help pull off some more fluid. They also put on a nasal cannula to help him with his sats.
We got another call at 2:00am from the resident saying that Max's heartrate was hanging out in the 200s and that he was trying even harder to breath. So they decided to intubate him. They also took another xray that showed that the fluid was still there. They said that it could be caused by two things: pnuemonia or an infection in his dialysis catheter. They took a ton of labs and cultures and we are still waiting on those results.
At 6:00 this morning, Tim called to check on him and his heartrate was still hanging out in the 200s. They also said that they pulled off too much fluid so they decreased the dialysis fluid perscription to see if it would help.
I called at 9:00am and an ultrasound and another xray showed the fluid still around his lungs. They decided to stick a needle in his chest to pull that fluid off. They ended up getting over 100mL of fluid from both sides total. His nurse said that his color was starting to pink up a little and that his heartrate was below 200 at 195- slowly coming down.
Max isn't happy about the intubation so they are trying to keep him somewhat sedated and comfortable, but his nurse said despite everything that they have given him he is still kicking and moving around.
So, at this point in time we have no idea what is causing this. I will keep everyone posted as we get new information. I don't know what we or Max has done to deserve all of this, but please continue to say prayers that our little boy pulls through once again showing us that he is a fighter.
11 comments:
words cannot describe the pain i feel for you right now...hang in there. i am praying even harder for little max (and his mommy and daddy) today.
Wow, I can't think of anyone else who has gone through so many ups and downs. Just know that this will only make Max stronger. I just know that I have never met a bigger fighter and your little guy is only 10 lbs! :) We will pray harder now than we have ever prayed before. We love you guys.
Chris and Jessica
You did nothing to deserve this, but that is how the spiritual world operates. God is good, and certainly not one to punish his creations. When situations like this occur, it is a real reminder that there is both Good and Evil. If you want to believe in one, you have to recognize the other.
God is control, and he may allow something like this to happen to allow for a greater dependence on Him, to help you to remember to trust, to love, to go to Him in times of good and bad.
Praying for you.
Beth and Tim please realize that you nor Max have done anything to deserve this. Don't belive that for a second... you can't put that kind of guilt on yourselves. this is just something that happens, be strong and don't be afraid to lean on your family and friends when you need to. they all love you and little max.
god bless.
I just found the excerpt from a book that I remembered when I read your blog comment. If you are interested, here is a link to it. Hopefully you will find comfort in it.
http://www.amazon.com/gp/reader/0830823948/ref=sib_dp_pop_ex?ie=UTF8&p=S00D#reader-link
The excerpt is from a book called “Is God to Blame?” By Gregory Boyd.
Keeping you all in my prayers!
I am thinking of you guys and praying. Like the others said none of you guys did anything to deserve this which makes it so much harder to understand. He is a fighter and a champion. He will come through this. Stay strong like Max.
Denise
I am sooo sorry that this is happening to you all! Max has been such a fighter and I know he will continue to fight! We are praying even more for all of you!
Catrina (cat81305)
Take solace in the fact that he is in the best place that he can possibly be and that he is receiving the best care that he could possibly be receiving anywhere - as frustrating as it might be at times.
We'll keep up the good intentions and prayers!
Take solace in the fact that he is in the best place that he can possibly be and that he is receiving the best care that he could possibly be receiving anywhere - as frustrating as it might be at times.
We'll keep up the good intentions and prayers!
Dave Schabell
BBHS
praying for you all; reading your posts brings back memories of being in ICU with our daughter for 9 months and she is now 12 so GOD will bring you through this just hang in there and keep strong
your doing an awesome job
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