It seems to be that the cause of the fluid in Max's lungs was dialysis. To say the least, too many things were started too quickly after the g-tube nissen surgery. What we think is happening, is that Max's belly area is inflamed from the surgery and pushing that dialysis fluid in forces it to go up into his lungs because it has no where else to go. So needless to say, dialysis was stopped yesterday morning to give him a couple days to heal. It will either be restarted tomorrow or Sunday- all depends on what his levels are. *Fingers crossed that this works*
Yesterday, Max was also doing a lot of gagging and retching, so they stopped his feeds for the evening to see if it would help any. It did a little, but he still gagged some. So, they called the surgeons to see what could be happening and they said that it's perfectly normal for him to be doing that after the nissen surgery. They said that the body has to adjust to the change. They don't want him doing this too much though because it risks unwrapping/ripping the nissen. If he continues to do it with his feeds they can give him Zofran to help with the nausea. His g-tube is leaking some and also looking a little infected through the dressing so surgery is going to take it off some time today to see how things are looking. It seems that every time you mess with it, Max cries. So something isn't right there.
Max is also having a VCUG done today. This is a dye study of his urinary tract. They are looking to see where the blockages are and to see if the urine is refluxing back up into his kidneys. Urology is simply trying to see what they are facing in the future.
Other than that, Max has been smiling and trying to be his normal self. He is still pretty cranky at times but we are hopefully moving past that with the changes that have been made for the day. Keep those fingers crossed that we don't have an infection in his g-tube to deal with. This was suppose to be a very easy surgery and recovery, but we are quickly learning that anything with Max is not easy. He likes to give his mommy and daddy a hard time. I have been told, "that's a boy for ya!" I guess this is just the beginning.
2 comments:
thank goodness there are at least some answers now so that you guys can move forward! i will keep praying that max heals and is able to come home soon!
I am so happy I was able to meet you and Max the other day at Children's. It is great to put faces with your names that we so frequently talk about in our house! We are pulling for Max and pray for him every night. The boys enjoy looking at his pictures on the blog. He is even cuter in person, even though he wasn't feeling good Monday. If you ever need anything let us know...I would be happy to go and hold him if there is ever a time he needs extra holding! Max is such a tough guy! Just trust your instincts and Max, they will lead you in the right direction. I hope and pray he heals quickly and can come home soon.
Jenni, Ryan, Alex, Max and Will Ward
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