July 29, 2009

Max's Phosphorus (and pictures)

Prayer Warriors: Max's phosphorus was very high (a whopping 24) again on Monday. The doctors have made another change to his medication and are continuing to increase the volume of his PD fluid. If the PD and medication continue to fail at keeping it at a normal level we are going to have to sit down and discuss the pros and cons of transplanting now rather than later.

They are going to recheck his labs on Friday to see where we stand. Please say a prayer that his levels look good and stay in the normal range so that we don't have to transplant before any of us, especially Max are ready.

To make things a little more clear, they are going to wait until he is fully established on PD. Meaning he will be totally off of hemo before they make any decisions about transplanting.

I personally think that it was elevated because of his good eating from over the weekend. With that said, I have been doing some research on phosphorus and it looks like pre-packaged foods (Gerber Baby Food) has higher phosphorus in it to help preserve it. So, Momma Max (as Dr. Ben calls me) is going to start experimenting with making my own baby food for Max, in my spare time that is. If anyone has and pointers, please pass them on.

Also, if you could pray for another dialysis patient who will be receiving their new kidney today. I don't know any specifics, but please keep them in your prayers.

On to some new pictures of the cutest little guy in the world:

Getting ready for dialysis

My new face everytime I see the camera

Drinking out of a water bottle for the first time

Proof that spit does exists

Daddy and Max watering the flowers

Chubba Bubba

The reason that Max can't go naked for very long

Max's first ride on the lawn mower

Happy Baby

Mommy and Max on my First Mother's Day

7 comments:

Anonymous said...

Tim is getting a belly like Max.

Beth said...

Yeah, that's what hospital food and fast food does to you. That's about all that we have time for.

Anonymous said...

Beth, we have a baby food grinder that you can use. We would grind up what ever we already cooked for us and give it to the kids. Worked well for our 3. Call Shannon. She said she would get it out for you. T. J.

Anonymous said...

Beth, when I make our sons baby food I make a batch at a time...vs. just enough for one meal. You can put the portions in an ice cube tray and freeze them and then after they are frozen pop them into freezer bags to thaw later. Good luck! Praying for all of you daily.

Jodi said...

Prayers all around.

Love the pics. Especially the water bottle & the happy Max ones. Adorable!

Anonymous said...

Max is just too cute... I can't stand it!! Miss you guys... give him a big hug for me!! :)
Amie (RCNIC)

Andrea Liptak said...

Beth: Try these websites for information on making baby food and baby food cookbooks ("Cooking for Baby").

http://www.alphamom.com/smackdown/2009/05/homemade-baby-food.php

http://www.alphamom.com/smackdown/2009/06/homemade-baby-food-travel.php