July 24, 2008

Max is on day 4 of dialysis and so far things are going great (*knocking on wood*)! He started on only 30mL of fluid going into his little belly, but he is up to 60mL as of today. They have been able to bump him up by 10mL every day so far and he is tolerating it beautifully. Once he hits the 80mL mark, they will slowly move him over to the "cycler", which is the machine that he will come home on.

Max's nurses are continuing to show us how to do the things that we will have to do when he comes home. Today, I got to change his dialysis catheter dressing. This procedure is a totally sterile procedure- mask and everything! This is one of the most important things that we will have to do once a week to prevent any infections from occurring.

We still have to learn how to hook him up to the dialysis machine (which we will do once he gets on it). We also have to learn how to put his NG (feeding) tube in. Max has a good aim at getting his tiny little finger under it and yanking it out- he is quick too! Along with this, we have to learn how to program the feeding pump. I don't know what people are talking about when they say that babies don't come with an instruction manual!

We are finally starting to see that very dim light at the end of the tunnel :o) We are well on our way to having our family all under one roof! One thing that Tim and I have learned over the past 6 months is- patience!!!

2 comments:

Anonymous said...

Congrats to the both of you! It is so good to hear the happy news about how well he is progressing. We continue to pray for his long-awaited arrival with his mom and daddy in his new home. It will be here before you know it! :)

Love,
Chris and Jessica

Catrina said...

I am so glad things are going well. I commend you for being patient and giving your son the best care you can! Keep it up! Keep getting stronger Max!!!

Catrina (cat81305)