June 2, 2009

That was very rude of me

Sorry for leaving all of you hanging. Yesterday was a crazy hectic day and I never got the chance to post anything. So here is the big news...

WE'RE HOME!!!!

Max had his first treatment of peritoneal dialysis last night and everything went flawless. I was a nervous wreck getting everything ready and hooking him up. You would've thought that I had never done it before. Needless to say the house is a complete disaster. We got home around 3:00, dropped everything in the living room, got Max down for a nap, met with a respiratory therapist so that she could bring out our oxygen supplies and teach us how to use them, run out to my mom and dad's to get all of the supplies, get a cart to put the machine on, eat dinner, try to enjoy a moment of being home, find all of the things that we needed before we started, get the machine hooked up and ready, hook Max up and try to clean up after all of that! Somehow we still got him hooked up a few minutes after 9pm. PHEW!

The machine was able to pull an extra 271mL off of Max last night. This is fantastic! The cycler didn't alarm once, but the pulse ox monitor did ALL night! While we are monitoring his oxygen we are also watching his heart rate. Dr. Ben and I decided to have the lowest heart rate at 100 bmp, well that obviously wasn't low enough. Max was going to about 95 bmp and the machine was going crazy. That thing is LOUD!!! Luckily, Max didn't wake up from it. It all worked out. Dr. Ben is trying to set up for someone to come out and change the perimeters and lower the volume since we are unable to change either one on our own.

We are so thrilled to be home. I still feel so much more rested even though I was up with the heart rate machine all night. I slept better inbetween beeps. Hopefully tonight goes even better with the PD and the heart rate.

Enjoy your work week and the beautiful weather!