October 21, 2008

Max is doing better. The x-ray that they did yesterday was worse than the one they did on Saturday, but he seems to be breathing a little better than he has been. He is still on the nasal cannula but they are slowly starting to wean him off of it. They did an echocardiogram today and it came back normal. He also spiked a temp this morning so they took cultures and those have also come back negative. They stopped his Lasiks dosage because of the long term effects it can have on hearing. His nephrologist said that he didn't feel it was doing much anyway.

They still have him on the highest dextrose dialysis solution they have and it seems to be doing the trick to some degree. They pulled over 400 mL off of him just from his dialysis yesterday, so hopefully that helped. They will most likely decrease the dextrose of his dialysis solution tomorrow.

They will also be doing a repeat x-ray tomorrow... keep your fingers crossed that this one is better than the last. His heart rate is still in the 180's-200's when he is awake but goes down to the 150's-160's when he is sleeping. His mouth is VERY dry so I am starting to think that they may be pulling off too much fluid- which would increase his heart rate.

No one is really sure why this happened, but at least his heart and any infections have been ruled out. It has been a very crappy weekend and week so far, but it's definitely good to see him feeling a little better. I will feel much better when he stops pulling and tugging every time he takes a breath and when his x-ray starts to clear up.

One good thing that he started doing while he's been in the hospital is suck on a green lollipop looking sponge. His nurses have been dipping it in sterile water or breastmilk and he goes to town on it. Also another reason why I think he is starting to get a little too dry. This is very encouraging though since he hasn't had any interest in sucking on a pacifier or bottle in a very long time.

I'll keep you all posted!

3 comments:

Rachael Schirano \\ Rachael Schirano Photography said...

i am happy to hear things are improving for max, even if it is only a little bit. keep up the good work little guy! we are still sending up lots of prayers...

Anonymous said...

I'm glad to hear things are improving. Continued thoughts and prayers are coming your way.
Denise

Floridians said...

It is so good to hear that things are getting better. He is such a tough little man. I have all my students praying for him too.

Kristina