September 5, 2008

Max at 4 months!



Well, as you can see in the video, Max took a bottle twice yesterday! Two 20mL bottles! This is a record for him. You have to offer it only on Max's terms though or else he wants nothing to do with it. When he starts shoving his hands into his mouth, offer a bottle :o)

Early in the week, they started to consolidate his feeds. We are very happy to say that Max is down to getting his feeds over a half an hour over the pump through his g-tube. The next step is a bolus feed. This is when they put the milk in a big syringe and let gravity take it to his belly- this happens in a much faster rate than the pump. Ideally, this is where they want him before he goes home.

Let's see. As of last night, Max was over 12 pounds. Take into consideration that he was full of his dialysis fluid his nurse, Tonya, weighed him. So we have to subtract some of that.

As far as the dialysis, he is doing pretty good with it. They started him out on Wednesday at 60mL of fluid and he is up to 100mL. They would like for him to be at a minimum of 120mL in order to go onto the cycler. His total goal is 200mL. If he continues to do well it looks like he may be on it sometime next week. They took a chest x-ray this morning to confirm that the fluid was staying where it's suppose to. The x-ray showed a little bit of fluid on the right side, but the nephrology fellow, Ben, said that this is totally normal for kids on PD. So no one is too worried about it. They will do a repeat x-ray in the morning to make sure it's not increasing. If they're not worried, then we're not worried.

Update on twins: Nicholas and Noah are doing well. They are still in the hospital just to work on their feeding skills and to make sure they are gaining weight. They should be home by early next week sometime. Thank you to all that prayed for them. I know that they appreciated it very much.

6 comments:

Anonymous said...

What a cutie! His facial expressions in some of those pictures are priceless! It is good to see that he keeps getting better.

With continued prayers and much love,
Chris and Jessica

Anonymous said...

It is fun to see Max doing the things babies his age should be doing! Love the outfit...we have the same one for Will. We hope Max contines to be on the up swing!
Jenni, Ryan, Alex, Max and Will Ward

Anonymous said...

It is great to see Max doing better and we will all pray that this will continue. It is great to see all of the smiles. God bless!!!

Tom and Laura

Anonymous said...

Congrats! It looks like he is doing really well.
Denise

Catrina said...

I am so glad Max is doing well! I love the pictures and video! Keep up the great work Max!! Take care!

Catrina (cat81305)

Rachael Schirano \\ Rachael Schirano Photography said...

oh that adorable and chubby face and all his expressions are just beautiful!