We don't have official word yet, but I just spoke to Tim about how last night went. The diaylsis had one low drain volume alarm and that was on the first drain of the night, which isn't uncommon at all. He ended the treatment with a positive UF (meaing the machine pulled more fluid off than it put in). The sleep study nurse put a nasal cannula on Max that reads how much CO2 Max is putting out along with how much pressure is behind his breaths. They can also give him oxygen through it. So she turned the oxygen on at a 1/4 of a liter (which is VERY low) and Max kept his sats at 94-95% all night. He never had trouble breathing as far as retractions go. Tim said he looked very comfortable and slept well. Max woke up once to roll on his side and they had him to where he had to stay on his back, but other than that he did great considering he looked like an "ant" according to Tim.
We don't have the blood gas results back yet, which I am impatiently waiting to here, but overall I would say that last night went fantastic compared to Thursday night. Thank you all for the continued love, support and prayers. You keep pushing us to be the best that we can be and we are greatful for that. I'll post again this afternoon with more updates and hopefully the new and improved plan.
Enjoy your beautiful weekend!
3 comments:
it sounds like things are looking better, so happy to hear good news. continued prayers!
I am so glad all went well with PD last night!!!!!!! YAY! Logan will have a low drain alarm at least once a week (more frequently if he's kinked) and normally we end up turning him onto his tummy as he drains better that way. YAY! I hope Max continues to do well on PD.
Wow Beth & Tim what a week! Beth it's okay to feel the way you've been feeling. You have been so strong for Max the last 16 months or so. I'm surprised you've not had more "melt downs" before now. Lord knows I would have! We are so glad to hear that you got some positive results, and we pray that things continue to go in that direction.
Much love and prayers
Michael, Dominique, & kids
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